Eahad.org

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  • Location: Germany
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EAHAD – The European Association for Haemophilia and ...

Eahad.org About EAHAD The European Association for Haemophilia and Allied Disorders (EAHAD) is a multi-disciplinary association of healthcare professionals who provide care for individuals with haemophilia and other bleeding disorders.Its members include haematologists, nurses, physiotherapists, laboratory scientists and researchers from across Europe.

Research Grants – EAHAD

Eahad.org The objective of the EAHAD Research Grants is to foster pre-clinical and clinical research collaborations in Europe and to support scientific projects aimed at improving the care of patients with inherited and acquired bleeding disorders.

EAHAD DATABASES

Dbs.eahad.org Welcome to the entry portal for Coagulation Factor Variant Databases supported by the European Association for Haemophilia and Allied Disorders ().The intention of this project is to gather together single gene variant databases involved in clinical bleeding disorders, principally haemophilias A and B and von Willebrand disease, as well as other rarer coagulation factor variants, including ...

EAHAD Factor VIII Variant Database

F8-db.eahad.org EAHAD F8 Database Latest News . We hope users will enjoy the updated appearance of the website (December 2020). During 2019 over 4500 additional cases were added to the EAHAD F8 database, including over 1000 new unique variants. There are currently 3052 unique variants in the F8 gene compiled within this database corresponding to 10144 individual cases.

Women and Bleeding Disorders Working Group – EAHAD

Eahad.org The EAHAD Women and Bleeding Disorders Working Group was formed in September 2018 with a mandate of two years. Its three aims are to: 1) gather, concentrate and disseminate knowledge among European healthcare providers on the diagnosis and treatment of women-specific bleeding symptoms in inherited bleeding disorders;

EAHAD Factor IX Variant Database

F9-db.eahad.org EAHAD F9 Database Latest News (February 2020) . An extensive programme of revision of published and unpublished data has been undertaken over the last 12 months. Many corrections and amendments have been made, for example updating of Human Genome Variant Society (HGVS) variant definitions, together with removal of duplicate case entries.

EAHAD Factor VII Variant Database

F7-db.eahad.org EAHAD F7 Database Latest News: April 2020 - New F7 DB Publication . We hope you like the new look (March 2021). See Citing Us (below) for information on our recent publications describing the EAHAD F7 coagulation factor database and the EAHAD-DB programme.. F7 Variants and DB Features . Factor VII deficiency is caused by variants in the gene (F7) that codes for coagulation factor VII.

Gene Therapy Working Group – EAHAD

Eahad.org The EAHAD Gene Therapy Working Group was formed in 2019. The working group will strive to be at the forefront of providing critical information to physicians and patients about gene therapy in terms of practicability and safety.

Mission and Aims – EAHAD

Eahad.org Mission. The European Association for Haemophilia and Allied Disorders (EAHAD) is a multidisciplinary association of healthcare professionals who provide care for individuals with haemophilia and other bleeding disorders.

Nurses Committee - Terms of Reference (TOR)

Eahad.org European Association for Haemophilia and Allied Disorders Ltd Registered Company Number: 06373427 (England and Wales) | Registered Charity Number: 1125081

EAHAD 2020: Just 2 months away! – EAHAD

Eahad.org EAHAD 2020 is taking place from 4-7 February under the direction of Congress President, Prof. Dr. Karin Fijn van Draat. The theme of this year’s Congress is “A Golden Age of Treatment Choice”.

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